January 29, 2003
1:30pm
Update

Mom's Obituary

Well, to update, my mom died at 6pm on the 27th.  I'm told she looked at my brother (who was the one laden with the responsibility of deciding to remove the respirator), flooded him with love, sighed and slipped away.  I can't believe she's gone.  It just doesn't seem real.

Thanks to the loving and generous contributions of EOS readers and a fantastic, heaven-sent travel agent (I'll NEVER forget you), I will be leaving tomorrow at lunchtime for Kentucky.  I will be back on Sunday night.

My heart is hurting and there's an empty space where she used to be (and she was a pretty big lady).  I've contacted some dear friend there and will be connecting with them as well as family during the 2 1/2 days that I'm there. 

I've been composing my speech for her funeral in my head and it's coming along well.  I have huge layovers on the way, so I can think clearing (maybe) and write it all out then.  Today is a mass of cleaning and laundry and getting ready to go.  Not sure what all is waiting there for me, but I'll have a story to tell when I get back, I'm sure.

Love to all of you and many warm thanks for all of the cards, letters and donations at this horrible time of my life.  I appreciate it more than you will ever know.

A special thanks to the special friends, including Sage, who have held me up during this time and thought for me when my brain was mush.  I don't know how I would have survived without you.

Talk to you on Monday,
 

Love,

 

 

 

 

January 27, 2003
4:00pm
Update

Mom has taken a turn for the worse.  They are pulling her respirator in one hour and she will probably die soon after.  I'm just not doing well.  I'll try to check in later on.

Love,

 

 

 

 

January 24, 2003
1:30pm or so

Largely, I'm sure, to the loving energy so many of you sent my way, I slept like a baby last night.  I didn't end up going to sleep until around 10, but I went right out and didn't wake up again until 6am (that's not happened in years!).  It can't be just a coincidence that the very day I bitched about it in my journal, it got better!

I had already determined to take a quiet night.  I dear friend of mine gave me a little reality check (in a very loving and supportive way) and that allowed me to shake the Superfection table in my head so that all of the pieces fell into the right shaped holes.  That was the beginning of my mess starting to make some sense, so I can really feel myself climbing out of this.

The early evening started off a little rocky.  Eric knew I was having a hard time through the day.  I had all this emotion and grief waiting to come out.  I talked to my brother early in the day and he told me it didn't look good.  She was losing ground and the toxin levels in her bloodstream were climbing.  According to her doctor, the level of toxins in a normal person's bloodstream is about 20, 100 is coma and 120 is brain damage.  This is, mind you, pretty much third hand information.  Hers is staying around 90.    Her pulse was staying quite high and her kidneys were failing.  They diagnosed her with ARDS (Arrested Respiratory Distress Syndrome) and had her on 100% oxygen.  They tried to cut her down and her oxygen saturation level plummeted, so they had to boost it up again.

So I was fairly bummy, being bombarded with images and memories of my fairytale childhood.  We were dirt poor, but I never knew it.  I thought everyone ate beans and ham for every meal.  My mom was amazing.  She could sew anything.   Dad once said that if he needed any car part, he could show mom a picture of it and she'd whip one up.  When my favorite clothes were outgrown, she'd cut them down and make clothes for my dolls from them.  When she'd make a new dress for me (and back then, flour came in wonderfully sturdy print cloth bags just the right size for making little girl clothes), she'd use the scraps to make a matching one for my Barbie or my baby doll.  She would walk my little legs of to take me to a particularly nice picnic site she'd found.  She'd plop down into the mud to make dozens of mud pies with me to play "restaurant."   If she got bored, she'd make a new stuffed toy or doll from her material scraps.  As long as I knew her, my mother had some giant container, like a giant barrel or box or crate, that was full of all kinds of scraps of material.  She got them from everywhere.  She'd take me blackberry and strawberry picking and she knew which parts of the woods grew the best ones in the wild.  She could find the best hazelnut and black walnut and hickory nut trees and the wild apple trees that grew hard, sour little apples that gave us what mom called "green apple bellyache" if we ate too many.  She found persimmon trees (and lord, I hate persimmons).  She was the most creative mom I've ever known.  We played for hours with little plastic formed animals who lived in barns made of old Puffs boxes and drank from ponds made of cupcake liners.  She once made my baby doll a crib from a giant Quaker Oats box.  She would cut pictures from magazines and paste them (with paste she made from flour and water) to the poster boar- like cardboard my grandfather would bring to me by the stacks.  The board was used to separate stacks of cans at the canning company where he worked for an exotic Greek man named Mr Panagos.  My grandmother (the one from several posts ago) also cleaned house for Mrs Panagos for years.  Anyway, mom would paste the pictures onto the cardboard and cut them out in goofy shapes to make puzzles for me.  She had a gallon pickle jar full of buttons and would let me spend hours sorting them into her metal muffin tins by color, by shape, then string them onto kite string with a darning needle. 

Of course, I didn't know to appreciate that at the time.  That was just how life was.  My first ten years were incredible kid-happy days.  It must have been horrible for my parents.  I know the rent on the first house I can remember was $50 a month.  Someone, when I was born, gave me a 1922 silver dollar and my mom and dad used to take it down to Mr Colk at the general store to let him hold for them to buy groceries against.  They were extremely poor, but I never knew it until I was an adult and talked to my mother about it. 

For reasons I still don't understand, largely due to missing information and my mom looking at the past through her own filters, it all started to fall apart around 1969 when she had my youngest brother (another brother was born in 1967).  She had a terrible, nightmare birth that involved forceps and should have been a c-section.  My brother suffered a damaged muscle in his face that caused one of his eyes to droop when he was tired and mom suffered something that changed her forever.  After that time, she was always in chronic surgery mode.  By the time I was ten, it pretty much fell to me to take care of the house.  It felt like betrayal in a way because it was day and night from the way it had been before.  My brothers were two and four and my father worked long hours.  Mom was always preparing to go into the hospital, coming out of the hospital or in the hospital and that hasn't changed much since then.

Because of all of the time she's been at death's door and sailed right back, it was hard to take this seriously.  My mom hears a doctor tell her all of the things that could be causing her symptoms, then focuses in on the worst case scenario and to her, that becomes her diagnosis.  Any time she'd tell us what was wrong with her, we'd pretty much have to divide by half or a third to get the likely side of reality.  We'd ask the right questions and get to the truth.

This time, I realized it was the real thing.  She wasn't bluffing or embellishing or looking for attention.  That hit me really hard and I had a tough time dealing with it, on top of the depression I was already fighting.  Yesterday, it all fell apart.  When I talked to my brother and heard how bad it was, it was almost more than I could take.  Nathan was in rare form, probably in response to my tension.  Eric called and said, "You sound down.  Is something wrong?"  (?!)  Pfft, YEAH!  Do you remember the part about my mom being at death's door?  I let him know what I tough time I was having and that I just wanted to go into a cave and rant and rage and grieve.  He swore that as soon as he got home, he would handle the world and I could go to our room and deal with things.  When he called me on his way home, he casually mentioned that he was going BY HIS FRIEND'S HOUSE for a while after work.  ???  That was the last straw for me.  I was pretty rude to him, including him saying, "I need to process this" (the fact that I was furious with him) and me replying "process this" and hanging up on him. 

When he got home (um, he didn't go to his friend's house), he took me to the back and we talked for a while.  He helped me get some perspective and I was able to articulate a lot of the things I was feeling.  It was good for me to get my head in perspective and he was able to help me quite a bit.  After a couple of hours, I left the room and checked my e-mail and found a letter from my friend, full of good advice and love.  It helped tremendously.  A few minutes later, my brother called again to say that she was conscious now and seemed better.  I told him everything that I wanted him to tell her and while we were talking, a nurse told him there was a phone he could use to call me from her room.  I could actually talk to her!  He hung up and called me again from the room.  He held the phone to her ear and I was able to tell her how much I love her and how much I treasure the memories of my childhood.  I told her that she was the reason I wanted to be a stay at home mom, so I could give some of what she gave me to my kids.  I spent about 5 minutes talking nonstop, telling her how I felt.  I told her how much I appreciated that she had given me her big book of poems to show that part of herself to me.  When I started talking to her, I went at it with the idea that I was saying goodbye, but as I talked to her, I could feel her presence very strongly and it just turned into me telling her I'd see her later in the year and that I *would* visit.  She was reminding me, yet again, that she wasn't going yet.  I did tell her that if she could, to fight to stay and be with us a while longer.  I also told her that if she was tired of fighting and knew she'd be happier on the otherside, then to go with my love and gratitude and understanding. 

Ed (my brother) talked to me afterward and told me that while I was talking to her, her vitals returned to near normal and she started trying to speak (probably to tell me how full of shit I was, but hey, it's progress!).  After I talked to him, Eric and I watched "Down From the Mountain," which is a documentary of a concert of the music from my favorite movie of all time, "O Brother, Where Art Thou."  It's the music I was raised with and a number of the people in the film had the exact accent from where I was raised, so that was soothing.  Despite what other regions might think, not all Southerners sound alike.

Eric and I talked more about my feelings about not going back to Kentucky just yet and he suggested that if I couldn't see my mom, maybe I'd feel better if I honored the other direction of the lineage and looked into costs to go visit Joe in Canada.  I looked and it is extremely, disgustingly cheap in both directions.  After some negotiation with Joe and Sandra, at this point it looks like he will be coming down to visit in February, which is a very, very good thing.  I miss him so much.  He and Eric are best friends and he is very close to the little kids, so it will be good for everyone.  I feel like I can honor my mom by being with my own children.

Speaking of them. I woke up this morning feeling much, much closer to them than I have in a long time.  I think the memories of my mom's early parenting put me back into the mode of remembering why I'm doing it.  I've been able to focus more on Nathan today and spend more time with him with him, just generally feeling better about being here.  He hasn't screamed even once and seems much calmer. 

I think what bothers me most about the situation with my mom is that rather than focusing on the wonderful things she gave me at the beginning of my life, I've spent all of the interim years feeling bad for the way her actions trashed out the 30 that came after that great childhood ended.  In this journey through forgiveness that I've been walking in the past couple of months, she was (I think) the final frontier and one that I didn't even consider exploring.  I am grateful that I had the opportunity to tell her how I feel and how much she means to me.  I didn't even know she did mean that much to me. 

My brother called during the several hours during which I was writing this.  My style of writing is best described as "whack a mole," in that I pop up and down and up and down every few minutes and every few sentences.  It's not particularly conducive to nonfragmented literary creation.  ;)  So Ed called and said that Mom is doing better.  When the phone rang, I was sure it was "the call," but instead, he told me that they have isolated the cause of the problem and are working to correct it.  Unfortunately, they can't cauterize the part of her stomach they need to cauterize until she's breathing on her own and they can go down her throat to do it.  She's doing much better in that respect and they've been able to take down her oxygen supplementation to 50%.  Her kidneys seem to be functioning better and her creatinine levels are stabilizing.  She's not out of the woods by a long shot, but she's doing much better.  If she doesn't make it, she has still given me incredible gifts beyond those she directly provided.  I feel much closer to my kids, much more at peace with the life I have chosen as a stay at home mom. If she does make it, I'll have a wonderful opportunity to see her through different eyes and hopefully visit her before the year is out.

Thanks for being there through this, everyone.

Love,

 

 

Good God, She's Verbose!  There's More!

      Jan 23, 2003
Jan 22, 2003 Jan 17, 2003

Jan 13, 2003

Jan 9, 2002

Jan 3, 2002

Dec 24-25, 2002

Dec 13-18, 2002

Dec 12, 2002

Dec 11, 2002 Dec 10, 2002 Dec 5, 2002 Dec 1, 2002
thru Nov 29, 2002 thru Nov 22, 2002 thru Nov 18, 2002 Nov 8, 2002
Oct 23, 2002 Oct 9, 2002 Oct 4-8. 2002 Oct 2, 2002
Last of Sept 2002 More Sept 2002 Aug - Sept 2002 August 2002
July 2002 June 2002 April - May 2002 Mar 2002
Feb 2002 Jan 2002 Dec 2001 Nov 2001
Oct 2001 Aug-Sept 2001 May-July 2001 Feb-May 2001

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